Is it NCGS or low stomach acid mis-diagnosed
Low Stomach Acid and Celiac Disease
I had written a smaller shorter post previously that seem to resonate with people and am now including updated post(s) that include more of the things I have learned since then.
Here is the link if you want a “cliff notes” version of this longer more technical post. https://celiacposterboy.wordpress.com/2014/07/16/is-it-ncgscd-or-low-stomach-acid-mis-diagnosed/
This will be a two part post as this post became too long to manage as one post. I hope this is helpful.
Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.
Dear Gluten Intolerant,
Low stomach acid has now been linked to a probable cause of damage to the Small Intestine before and/or occurring with a Non-Celiac Gluten Sensitivity (NCGS) or Celiac diagnosis.
See this research as reported on celiac.com that discusses the increased risk of/for someone to develop celiac disease after taking PPI’s.
Note how the article starts quoting
“Rates of celiac disease and the use of drugs to inhibit the secretion of stomach acid have both increased in recent decades. A research team recently set out to explore the association between anti-secretory medication exposure and subsequent development of celiac disease.”
If these medicine are lowering stomach acid what cause effect relationship does/ could this have on Celaic/NCGS diagnosis is what he is postulating.
He goes on to say without being very technical (read the whole article for yourself) that
“The data clearly show that patients who use anti-secretory medications are at much greater risk for developing celiac disease following the use of these medicines.
The fact that this connection persisted even after the team excluded prescriptions for anti-secretory medicines in the year preceding the celiac disease diagnosis suggests a causal relationship”.
If even after a year OFF these medicines your chances of developing Celiac Disease (CD) not to mention even NCGS which is much more prominent surely the researcher is correct in postulating that there is a cause and effect relationship between low stomach acid and NCGS and/or Celiac disease.
Surely there is something we can learn here.
I now postulate some homework for the reader of this blog post.
Do some research for yourself and see if achlorhydia or hypochlorhydia symptoms don’t at least resemble in some manner all of the GI symptoms you have been having. (I note some of the many symptom’s low stomach acid can present with below as referenced from Dr. Myatt’s online article “What’s Burning You” for easy reference (It might not be what you think (my words))
It is important to note here that “some” symptoms does not mean all but many or several.
It is called a differential diagnosis.
It is an important diagnostic tool in medicine. Think of the tv show “House” where they spend the whole hour/over a week times going through the ‘differential diagnosis’ in short any one symptom can/have many different causes.
The trick is how to quickly eliminate possible outcomes as symptoms (many) go up.
All is usually never meet because that would make the disease in full outbreak and obvious even to the layman a condition described as “frank” or “classic” Scurvy or Rickets as an example.
Sadly too often after 8 to 10+ years of testing after all the differential diagnosis’s are ruled out you are said by process of elimination to have Celiac Disease if you are lucky or maybe NCGS and not some other acronym GI disease as I like to refer to them as a group.
GERD,IBS,UC, Chrons etc because if they turned down that street … . you are/could be in/at a dead end for they stop looking at the trigger (gluten) as the cause of your gastric upset/digestive disorder(s).
So in summary if 3 or 4 or 5 or 6 of these symptoms overlap “many of’ these symptoms could be Low Stomach Acid related.
IF that is the cause/case for you then there is hope! For remission!
From Dr. Myatts’ Online article what’s burning you? http://healthbeatnews.com/whats-burning-you/
Diseases Associated with Low Gastric Function
Low stomach acid is associated with the following conditions:
* Acne rosacea
* Addison’s disease
* Allergic reactions
* Candidiasis (chronic)
* Cardiac arrhythmias
* Celiac disease
* Childhood asthma
* Chronic autoimmune hepatitis
* Chronic cough
* Dermatitis herpeteformis
* Diabetes (type I)
* Gallbladder disease
* Graves disease (hyperthyroid)
* Iron deficiency anemia
* Laryngitis (chronic)
* Lupus erythromatosis
* Macular degeneration
* Multiple sclerosis
* Muscle Cramps
* Myasthenia gravis
* Mycobacterium avium complex (MAC)
* Pernicious anemia
* Polymyalgia rheumatica
* Reynaud’s syndrome
* Rheumatoid arthritis
* Sjogren’s syndrome
* Stomach cancer
* Ulcerative colitis
When low in stomach acid we become low in essential nutrients
Quoting from Dr. Myatts “what’s burning you” article
“Our bodies need 60 or so essential nutrients. “Essential” means that the body MUST have this nutrient or death will eventually ensue, and the nutrient must be obtained from diet because the body cannot manufacture it. Many of these essential nutrients require stomach acid for their assimilation. When stomach acid production declines, nutrient deficiencies begin.
Calcium, for example, requires vigorous stomach acid in order to be assimilated. Interestingly, the rate of hip replacement surgery is much higher in people who routinely use antacids and acid-blocking drugs. We know that people who have “acid stomach” were already having trouble assimilating calcium from food and nutritional supplements due to lack of normal stomach acid production. When these symptoms are “band-aided” with drugs which decrease stomach acid even more, calcium assimilation can come to a near-halt. The result? Weak bones, hip fractures and joint complaints resulting in major surgery.
Jonathan Wright, M.D., well-known and respected holistic physician, states that “Although research in this area is entirely inadequate, its been my clinical observation that calcium, magnesium, iron, zinc, copper, chromium, selenium, manganese, vanadium, molybdenum, cobalt, and many other micro-trace elements are not nearly as well-absorbed in those with poor stomach acid as they are in those whose acid levels are normal. When we test plasma amino acid levels for those with poor stomach function, we frequently find lower than usual levels of one or more of the eight essential amino acids: isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, and valine. Often there are functional insufficiencies of folic acid and/or vitamin B12.”
Remember, these are essential nutrients. Deficiencies of any single one of them can cause serious health problems over time. Weak bones, diminish immune function, failing memory, loss of eyesight and many other “diseases of aging” are often the result of decreased stomach function.”
It is me again reader.
So low stomach acid is the triggering agent (often) for low nutrients.
Make too much sense!
Now don’t take Vitamin’s for this condition where low Vitamins/Minerals are known to be low in patients who have this condition because … . (if you do you won’t need to keep coming back to the doctor) I can almost hear the doctor say now.
Of course he/she doesn’t say that … just that the “average person” doesn’t need to take Vitamins.
Well I hate to break it too you … . but if you are having GI problems and reading this blog post on the celiac posterboy’s blog then you are not the “average” person. You my friend or a sufferer or a friend of a sufferer still looking for answers.
If that is you then consider taking either powdered stomach acid – Betaine HCL or taking Niacinamide to help you reset your stress clock.
A Canadian researcher wrote about this connection 15+ years ago but still most doctors’ don’t understand this connection between about how “Niacin treats digestive Problems”
Here is the full link so you can research it more yourself. http://orthomolecular.org/library/jom/2001/articles/2001-v16n04-p225.shtml
And you might not after a first reading.
I didn’t believe it myself for over a year . . . but every time I thought about it – it (Low Stomach Acid) made/makes the most sense to me.
**** Note: research this yourself. Here is a link about how to take Betaine HCL (powdered stomach) for maximum effectiveness. http://20somethingallergies.com/how-much-hcl-do-i-take-learn-to-test-for-your-correct-dose/
Don’t take my blog post as medical advice. It is only what I did … it might not work for you but I think it is worth a try especially if you are not now taking an acid reducer. (see notes below about why this might) be more difficult if you are already taking an acid reducer … because the rebound wall (see/google chris kresser what everybody should know about stomach but doesn’t) keeps us locked in … sometimes for years.
Since I was not taking acid reducers at the time I took Betaine HCL my stomach problems improved and I am sharing this now in the hopes it might help yours too!
Now back to (really) LOW stomach acid being diagnosed as HIGH stomach acid these days.
How can we know if it truly high or low? You’ve heard the phrase timing is everything well it is here too!
Timeline is important in any diagnosis.
IF your stomach acid was HIGH as you often hear (everywhere) you hear take a Proton Pump Inhibitor aka acid reducer’s for heartburn/GERD (medical name for heartburn) then eating food (carbs, greasy things) wouldn’t bother you.
The acid would cut it up but if it is already low/weak then even a little acid can burn your esophagus which is not coated like the stomach to protect you from high acid.
BUT if it is low to start with then food will WEAKEN our/your acid so that you lose the food fight your in and things (carbs/fats) become to ferment, rancidify and cause heart burn.
Leading in time to Non-Celiac disease first and with enough injury (and time) to Marsh lesions qualifying you for diagnosis as a Celiac candidate/ patient. See above link between/about PPI’s in the year preceding a Celiac diagnosis.
If you (can) be that patient and weight the xx number of years for all this damage to occur, there is a better way it is called digestion!
A virtuous cycle can replace the vicious cycle you are now in – it is caused digestion.
Digest your food with healthy stomach acid and your body will thank you for it with the God given burp.
A healthy child burps (at 6 months of age normally) and a healthy adult should too and you will again after taken Niacinamide 3/day for 6 months or this is not the right diagnosis.
*********Note this is not medical advice only my experience with Niacinamide and my many years researching this topic as a fellow (now former) sufferer.
Let me make these disclaimer(s).
If you are a) experiencing heartburn that causing vomiting (with unintended weight loss) you may have a special case of heartburn that feels like heartburn (on steroids) that is really Bile Reflux and taking Stomach is not something you should do without medical advice and supervision.
See this NYtimes article that discusses the many complications often seen with Bile Reflux patients and why it is treated as Heartburn often and why Bile Reflux is especially hard to recover from.
b) you are already taking an acid reducer then the chance you will get better (off of acid reducers completely) is only 50/50 on your first try but going low CARB can help your transition.
Otherwise most people will get better when taking BetaineHCL for gastric support and Niacinamide to help them/you reset your digestive processes.
See this online article about how Jo Lynne Shane got off Nexium for good. http://www.jolynneshane.com/how-i-got-off-nexium-for-good.html
and her Epilogue http://www.jolynneshane.com/epilogue.html
You will see she still struggles some but is much better when she let her natural digestive juices do their job. I call it the “Natural Order of Things”.
See this article about the digestion process being a North South Affair from the bodywisdom website http://bodywisdomnutrition.com/digestion-a-north-to-south-process/
Also see these posts by the Celiac Posterboy that explain in more detail how to get off of Nexium/Prilosec for good and why this (low stomach) is happening and/or how LOW stomach acid is mimicking IBS, GERD, NCGS and/or Celiac disease in its’ most advanced state is happening and what you can do get off of Nexium or Prilosec for good.
Taking it (Niacinamide) (or any B-Vitamin) should be taken 2 to 3/day (too keep up serum levels) for 3 to 4 months (the time you can store B-Vitamins) in the liver mostly.
Once you have a distinctive BURP that displaces the bloating and sense of “I am going to explode” if I eat another bite (though you haven’t eaten half your meal) then normal digestion is occurring again.
If you stool did not sink before this process (of taking Niacinamide begun) and burping became your “new normal” then it (your stool) will begin to sink too!
Burping without bloating is the “Natural Order” of good digestion.
This (low stomach acid) thing is a vicious cycle. STRONG stomach acid makes it a virtuous circle/cycle.
All heartburn is not equal. IF your stomach acid is truly high then it WILL occur between meals when there is no food to tamp down the fire (occurring in your stomach) not your esophagus.
The excess pressure from fermented carbs push open the trap door allowing the low acid you have to burn the lining of your uncoated esophagus. (More on that later) in the next post.
As always search for the “Celiac Posterboy” or “Celiac Poster boy” or “Fight Gluten Win” or “Fight GERD Win” if you want to read all my blog posts for as I have said elsewhere in this blog and it bears repeating “To Educate is to Free” Truly.
But I think you will find in 3 to 4 months of taking Niacinamide 3/daily that as a healthy child burps at 6 months? right that is how we know it’s digestive system is strong enough to digest real food. That it it’ true for adult’s as well.
See my the “Way Back” http://www.celiacposterboy.com/Epilogue-Way-Back-002.htm Celiac Posterboy.com page about the process you have to go through with your mind to convenience your brain what your body already knows when you begin BURPING for the first time in years and year that something knew and wonderful is now happening – Digestion in all its beautiful glory! and Gluten and Lactose need not be(e) a problem for you any longer.
But it will take probably a year to convenience your MIND what your body already knows that is why the “2 proofs” are so important to understanding that something NEW different and WONDERFUL is now happening to you – DIGESTION as it was meant to happen. The “Natural Order” of things.
You are/will bee BURPING in 4 to 6 months Praise/Thanks be(e) to God!
After 6 months of no flareups or “accidental” glutening’s even when your friends still suffer from “good” compliance/control from background gluten or gluten cross contamination issues 18 to 20 hours after the “glutening” you will be once a day regular.
Your mind will slowly catch up. To what your body already knows. Niacin treats digestive problems http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm
This research is 15+ years old and doctors have not caught up to this fact either. You needn’t suffer any longer if your LOW stomach acid is being misdiagnosed as NCGS, GERD, Heartburn, IBS, and yes even Celiac Disease then remission from LOW stomach is possible.
It worth noting again with the same emphasis I started this blog post with that Remember **** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your regimen.
For I have found if people finds success in other non-traditional ways i.e, Vitamins etc.. .. people get frustrated by this and will often attack people who are saying different things.
You don’t need a Vitamin etc?
WELL if you are reading this blog post either you or a friend is still suffering and I can’t say for 100% percent certainty this will help you the way it did me. I can say for 100% certainty it helped me!
And I pray to God it helps you too!
I really believe God helped me to understand these things for myself 2 Tim 2:7 and I am just trying to help others’ as I have received help of God 2 Cor 1: 3,4 .
Tell someone (share) is all I ask Are You a Starfish (Part 2 – of a Former Sufferer’s Journey) tell others is all I ask – however that is (facebook, twitter, comment on my blog, email a friend this link or link this blog to yours, reblog on your site (cite your source) or review my book on Amazon when you are BURPING for the first time in years or (EVER) – tell a friend about the/this Celiac Posterboy blog post
Or my book/ebook “How to Fight Gluten/GERD and Win” is all I ask but don’t let the chain break with you. There a lot of starfish (sufferers’) who STILL need help.
And maybe you are one of them! Starfish/reader If you are one of those one who is still suffering from a medical misdiagnosis if so remission is possible! I did not say “cure” but remission is possible.
This is longer than I planned as most of my posts seem to be but when you are trying to fight error and confusion it takes a lot of (un)learning to educate ourselves.
(Digestive) Peace is possible but it takes works to educate ourselves to the real cause.
As I have said elsewhere in this blog. It not a long way back if you know the way. Let me be your guide way back for God being my help I have found digestive peace. Praise bee to God!
2 Timothy 2: 7 “Consider what I say; and the Lord give thee understanding in all things” this included.
2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort; 4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble (starfish), by the comfort wherewith we ourselves are comforted of God.”
The Celiac Posterboy by the Grace of God,
Joe “Rock” Pen Name